I met with the Genetic Doc’s to discuss the entire process/probabilities, etc for the Genetic Testing. It was like listening to an Advanced Math Instructor & way over my head! For me, the test was just a blood draw. However, the harder part was gathering the family history. With 10 siblings & loads of aunts, uncles & cousins, it was a challenge. In addition, the “rainbow of cancer flavors” on my Dad’s side of the family is incredible. (prostate, brain, lung, bladder, blood, skin & the list goes on) Quite a document I have compiled for my family & the nice thing is it’s done, if needed for the future. Unfortunately, the genetic testing showed/proved nothing in my case.
Dr. Debra Frassica has been my Radiation Oncologist thru this entire process. She is getting ready to “release” me from monitoring. She feels that I am under enough SCRUTINY & TESTING by my Main Oncologist & the Orthopedic Oncologist. It’s a good thing, however, she is the ONE DR who cares about me as a WHOLE PERSON – not just the area between my knee & hip. She likes getting into MY Head to know what I am thinking to learn how my recovery is going. As she reminded me today, I need more time to recover not only physically but mentally. We reminisced about how sick I was & how far I have come. She is the Doctor who got the ball rolling for me. She saw how much pain I was in just trying to walk, move & sit. She’s a GEM in my book!
Dr. Guintoli was very concerned that I had developed 2 unrelated & major cancers in a 3 year period. He recommended that I consider Genetic testing to see if there was a reason for all that had happened. I asked about the benefit of it. He indicated if “something” were found in terms of my genes, it would be useful to my siblings & relatives in my blood line. I was wondering if the Dr’s wanted to know for Scientific reasons about what was happening in my body & the fact that I am surviving … just a thought.
He also told me he had gotten calls & email from my TEAM of Sarcoma Doctors. They wanted to know how I was doing. He indicated they were very protective & territorial of me & my health. I just smiled & said, “thanks”.
My hysterectomy was done on July 31, 2009. I was thankful to have the cancer REMOVED. However, this meant an entirely new 5 year cancer “follow-up” schedule, oh joy.
I had a uterine biopsy done on July 12, 2009. On the 26th, I met with my GYN only to learn I now have UTERINE CANCER. I was referred to the Chief of Oncology/Gynecology at Johns Hopkins, Dr. Guintoli. My initial visit with him was great, as he gets where I am MENTALLY. It’s been a rough ride & I am scheduled for a complete hysterectomy on July 31.