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Waiting for results & more …

January 1, 2006

Waiting for the biopsy results was my next challenge.  It was hard knowing that I had an issue but not knowing the severity of the problem.  In early December I got word the tumor was BENIGN – noncancerous!  Yeah, I was Happy.  The plan was to eventually schedule surgery to remove it after the New Year.

As the month of December progressed, the pain & pressure in my thigh was getting worse.  I could barely bend my leg & started walking in a way to accommodate the limb that was not functioning normally.  My primary care physician, Dr. Lynn Alonso was working with me on managing the pain.  I was taking some strong narcotics & still experiencing levels of pain like I had never felt before.  At times, bringing tears to my eyes.  (I stopped driving in November because I could not move my leg from the gas pedal to the brake as needed.)

I was sure something was not right.  After much fuss, I fought to become a priority again for the Dr’s at Johns Hopkins.  I got an appt with Dr. Frassica for follow-up on the pain & current condition of my leg.  After the exam, he said, “Lisa, I know this is not what you want to hear but I am not convinced this tumor is benign.  I don’t care what the needle biopsy results were.  With your permission, I would like to do a CORE biopsy, where we cut out a piece of the tumor & test it.”  I agreed.  The appt was set for Monday, January 9, 2006, my sister Janet’s Birthday.

Filed Under: My Sarcoma Journey

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