a mutual friend sent Shelly my way, so THANKFUL for Mr. Lynch!
—– Original Message —–
Sent: Tuesday, January 17, 2006 11:55 PM
Subject: Lynch friend emailing to say hello
My name is Shelly. My family and I have been friends with the Lynch family ever since I was a baby. Bob just emailed me the other evening telling me about your health challenge since I too had a sarcoma in 1988. He asked me to be in touch with you. Mine was a mixolipoid sarcoma lodged in my vastis lateralis (one of the four quadriceps) of the left thigh. It sounds like you are facing something very similar. I recall it as if it were yesterday just how afraid I was facing such daunting news. I could not believe what I was hearing the doctor say to me that day he told me the horrible news.
I’m not sure where you live, what sort of treatment you are undergoing and where you are currently with the process, but I wanted you to know that there are folks out there who have undergone it and are still alive and kicking, happier than ever. I know that I’m very lucky to have kept as much of my leg as I did after having chemo, radiation and surgery all within 3 months time. At that time the doc told me that 10 years prior to my illness, amputation would have been the only treatment. My reason for telling you this is that the breakthroughs in cancer treatment are so enormous every day that what seems like the end of the world may be just a large detour on life’s journey.
I certainly don’t mean to trivialize it, but please get yourself a copy of Dr. Bernie Siegel’s “Love Medicine and Miracles” and keep going. Be positive, get out and be with friends and loved ones, do the things you love to do, rent funny movies, and believe that all will be well. Your soul is strong and your mind’s capacity to heal is greater than any of us even realize. I wish you the very best Lisa as you face some tough times. Though the road will be bumpy from time to time, hang on. Please feel free to email me with questions or thoughts if you’d like. May God be with you. Someone who understands the feelings, the unanswerable questions, and the fears.
My Response to Shelly …
Date: Saturday, January 21, 2006 9:09 PM
I do appreciate your support. When this all started with the possibility of cancer, Mr. Lynch called me personally to tell me about YOU. He is such a caring and wonderful person. Gosh, I don’t know where to start. WE definitely know now it is a sarcoma in the right thigh. I do not know yet what kind. The first biopsy was benign but the second proved otherwise. I had a liver biopsy yesterday as I have lesions that needed to be checked. The Dr’s indicated they do not think they are cancer cells but wanted to rule out the possibility before moving forward. I am under the care of three Dr’s @ Johns Hopkins Medical Center. The PLAN (if the Liver Biopsy is negative) is an AGGRESSIVE Chemo/Radiation combination, surgery (to remove the tumor) and possible radiation “post surgery”. This is in a 4 month period.
I have had some exposure to radiation as my Dad took it for prostate cancer. I also had some exposure to chemo as my brother Don took it when he had bladder cancer. He died just last April. So this is all very FRESH for me. Up until this point, I have rolled with each day just doing what I need to do. I have not been afraid about taking chemo or radiation because of what I already knew. The hard part is when I was being told I had cancer. That’s tough to describe to anyone.
I think this week the reality really set in. On Thursday, I woke up crying, scared and filled with fear. Then Friday on my way to the hospital, I felt like throwing up as my stomach was so nervous. This morning I was nervous again but it has now passed. I really appreciate the support and will continue to keep you posted. Thanks for allowing me to write to share this emotional experience. I will be writing again. Thank YOU … Lisa